Ready to Make a Wish?

Aaron's been talking a lot lately about going to Legoland in California.  We've been discussing how to get there.  Airlines are notoriously hard on powered wheelchairs.  Aaron says he doesn't want to travel without his chair.  Now that we've had a couple chairs and with Aaron's increasing reliance on them, we're right with him on those points.  California would take too long to drive to from Michigan, so we may end up waiting to visit Legoland in Florida when it opens.

Aaron is still in his loaner wheel chair from MDA.  The joystick control is on the left-side and can't be moved without new brackets and arm rests it looks like.  The tracking is terrible, it drives like a 5HP boat on the ocean.  It takes forever to change direction and when it does, it goes too far.  It's a 300 lb. sea-monster.

He's going to need a better chair if we're going to go out of town.  Cheryl's been hounding a couple of the local wheelchair dealers.  I say "a couple" because they are the only ones that deal in the chairs that match our needs.  Obviously their lives aren't in fast-forward.  What's the rush?

Updates:
Aaron is still able to walk to the next room, but then collapses in the nearest seat to rest his back.  I'm often helping him by supporting him as he walks.  Our house hasn't gotten any bigger and his chair won't navigate most of it.

MDA has offered to send a motorized hospital-style bed.  Aaron is having trouble sleeping comfortably through the night and is complaining of soreness in the morning.  The bed will help him rest his back when he's awake also without making him lay all the way down.  He's been having trouble breathing lately because of his weakening posture and I'm starting to think that bed-side oxygen might be needed soon.  Fast forward.

Sarah is excited to have Aaron's current bed as long as we replace the sheets and comforter she says.

The van's working great, except in the snow.  It's been the snowiest winter ever I think.  It's melted off the roads now, so the van is great again.

My sister, Michelle has gone way out of her way to provide real tangible help.  I love you Michelle, thank you so much!  She put up this site for us.  Please share it: http://www.giveforward.com/giveforaaron

Thanks for caring enough to read this!